The ALS community is mourning the passing of Brooke Eby, a widely known ALS advocate, storyteller, and online community builder who died at the age of 37 after publicly sharing her experience living with amyotrophic lateral sclerosis.
The ALS Network announced Brooke’s passing on October 1, 2026, describing her as an advocate, storyteller, community builder, and friend. Her death marks a profound loss for the many people who followed her journey and for members of the wider ALS community.
Brooke was diagnosed with ALS in March 2022 at age 33. Following her diagnosis, she began documenting her experiences online under the name “Limpbroozkit.” Through candid, humorous, and educational content on TikTok and Instagram, she offered followers an honest look at life with ALS while helping raise awareness about a disease that can also affect younger adults.
Her influence extended well beyond social media.
Brooke founded ALStogether, an online peer community created to connect people living with ALS and their caregivers. The community provided a space where members could exchange information, ask questions, share experiences, and find support from others facing similar challenges. The ALS Network has emphasized the importance of connection, community support, and resources for people living with ALS and their families.
In 2026, ALStogether began being integrated into the ALS Network, further extending the community Brooke helped create.
Her work was also formally recognized in June 2026, when she received the Dean and Kathleen Rasmussen Advocate of the Year Award for her advocacy.
For many people, Brooke’s willingness to openly discuss her diagnosis helped make conversations about ALS more personal and accessible. Rather than allowing the disease to define her solely by her diagnosis, she used her public platform to connect with others, share information, and encourage a sense of community.
Her legacy can be seen not only in the thousands of people who encountered her stories online but also in the community she helped build for people living with ALS and their caregivers.
Brooke Eby’s death leaves behind a significant void for her family, friends, followers, and the broader ALS community. Her story, however, will continue through the people she encouraged, the conversations she started, and the connections created through her advocacy.
As the ALS community remembers Brooke, condolences are with everyone who knew and loved her. Her contribution to ALS awareness and peer support will remain an important part of the community she worked so passionately to strengthen.
